Resources

Care Plan Templates

The NICE clinical guideline for epilepsy says that “all children, young people with epilepsy should have a comprehensive care plan that is agreed between the person, their family and/or carers where appropriate, and primary care and secondary care providers. This should include lifestyle issues as well as medical issues.” 1

The NICE clinical guideline also says that the care plan should be regularly reviewed in a structured way, at least yearly, and with a specialist.1

Below are examples of care plan templates and completed care plans, which are intended to be a useful resource for health care professionals.

Epilepsy Action’s care plan template and an adapted example:

General care plan template based on NHS care plans and example:

Frequently Asked Questions (FAQ)

A printable version of the FAQ is available to help your patient and carers.

NICE - Information For The Public (Epilepsies)

This guideline covers diagnosing, treating and managing epilepsy and seizures in children, young people and adults in primary and secondary care. It also addresses epilepsy service provision, including psychosocial considerations and guidance on what information to communicate to patients and carers.2

NICE

National Institute for
Health and Care Excellence

Prolonged Or Repeated Seizures And Convulsive Status Epilepticus

Only prescribe buccal midazolam or rectal diazepam for use in the community for children, young people and adults who have had a previous episode of prolonged or serial convulsive seizures.
Administer buccal midazolam as first-line treatment in children, young people and adults with prolonged or repeated seizures in the community. Administer rectal diazepam if preferred or if buccal midazolam is not available. If intravenous access is already established and resuscitation facilities are available, administer intravenous lorazepam.3

ESNA - Best Practice Guidelines

ESNA is the national professional organisation for all nurses supporting people with epilepsy.

This document is intended to serve as a guideline for those purchasing as well as delivering training in the administration of Buccal Midazolam. It is hoped the guideline will provide assistance to the local regulatory authority and to help establish a national standard of minimal training.

ESNA

Epilepsy Nurses Association

BUCCOLAM Patient Website

The BUCCOLAM Patient Website contains useful patient resources, including general information about epilepsy along with reference information and training materials that are specific to BUCCOLAM. There are specific resources for patients of different ages, including infants and young people. Please note that due to the presence of product-specific information, this website is only suitable for patients who currently have a prescription for BUCCOLAM.

Printable Materials For Patients

PIL: The Patient Information Leaflet (PIL) is the leaflet included in the pack with a medicine. It is written for patients and gives information about taking or using a medicine. It is possible that the leaflet in a specific medicine pack may differ from this version because the PIL may have been updated since the medicine was packaged.

‘How to administer BUCCOLAM’ leaflet: A printable leaflet is available to help your patient and carers understand how to administer BUCCOLAM. If you would like a hard-copy supply of this leaflet, please contact your local KAM.

NICE Clinical Guidance CG137 ‘Epilepsies: Diagnosis and Management’

This guideline covers diagnosing, treating and managing epilepsy and seizures in children, young people and adults in primary and secondary care. It also addresses epilepsy service provision, including psychosocial considerations and guidance on what information to communicate to patients and carers.3

Epilepsy and Driving

Patients are legally required to notify the DVLA if they suffer from fits, seizures, convulsions, or any medical conditions which affect their driving.

Click here to access the DVLA notification form: more info.2

Click here to access the legislation covering drivers with epilepsy and information on assessing fitness to drive: more info.

More information
If you would like any further
information, please contact
Neuraxpharm by emailing
medinfo-uk@neuraxpharm.com
or calling +44 (0) 7375 953 240

References:

  1. National Institute for Health and Care Excellence (NICE). Epilepsies: Diagnosis and management- information for the public. Available from: https://www.nice.org.uk/guidance/cg137/resources/epilepsies-diagnosis-and-management-pdf-35109515407813

  2. Government Digital Service. Fits, seizures or convulsions. Available from: https://www.gov.uk/convulsions-and-driving

This information is provided as a resource to HCP’s who prescribe or administer Buccolam.

Reporting of adverse events (Healthcare Professionals in the UK)

Adverse events should be reported. Reporting forms and information can be found at: www.mhra.gov.uk/yellowcard or search for MHRA Yellow Card in the Google Play or Apple App Store. Adverse events should also be reported to Neuraxpharm. at: pv-uk@neuraxpharm.com